4th EAHP SIFO Synergy Certification Course Rare diseases and orphan medicines as an integral part of European healthcare setting

When: 11th-12th May 2023
Congress Venue: Acquario Romano - Rome
Professions Concerned: n. 150 Pharmacists

During this EAHP Synergy Certification Course the attendees will be able to acquire more knowledge about:

- European policies on rare diseases and health insurance funds management.
- Access to and approval of new medicines according to the EMA perspective.
- The management and the therapeutic pathways for rare diseases; the relevance of the rare disease's          networks and the role of genetics in rare diseases.
- The patient perspectives and the available patient support programmes in Europe related to rare diseases.
- The role of the Real World Evidence (RWE) in the evaluation of rare diseases.
- The sustainability of innovative treatments for rare diseases in the context of overall public health care system.
- The complexity of dispensing orphan medicines or medical devices for patients affected by rare diseases according to the experience of the hospital pharmacist.
- The effective communication on rare diseases across healthcare sectors and with patients.
- Available databases, observatories and websites with useful information on rare diseases and orphan medicines.

An interactive panel discussion will facilitate exchange and interaction among speakers and participants coming across Europe.

Download the full Program                             Download Conference Proceedings

Chief Scientific Project and Scientific Committee:
- Piera Polidori: EAHP Director of Professional Development
- Nenad Miljković: EAHP Director of Finance
- Maria Ernestina Faggiano, SIFO Director of Finance